Drs. John DeLuca and Yael Goverover have recently received a grant from Biogen IDEC to study how persons with Multiple Sclerosis perform everyday life tasks. The project entitled “The Use of Actual Reality to Measure Everyday Life Functional Activity in Multiple Sclerosis” has received a grant of $139,325 to conduct this research.
It is now well documented that multiple sclerosis (MS) can have dramatic effects on performance of everyday life activities. Despite this knowledge, the ability to assess problems in functional activity remains elusive. Outcome measures in MS have been geared primarily towards assessment of “impairment” and/or self-report instruments of quality of life (QOL).
This study will test a new and innovative assessment for measuring actual everyday life activities called “Actual Reality” (AR). AR is a performance-based assessment approach that involves utilization of the internet to perform three actual everyday life activities, which include purchasing: (1) an airline ticket, (2) cookies and, (3) pizza for a party. The study will focus on the development and the initial establishment of psychometric properties (e.g. reliability) of the AR tasks. AR is a significant step forward in broadening the scope of assessing the performance of Instrumental Activities of Daily Living and making the assessments more accessible and relevant to people with MS.